SCRS: Semantic Clinical Registry System for Rare Diseases
The SCRS for Rare Diseases project is a generic framework to set up a clinical registry which takes advantage of semantic web technologies. Patient's data will be stored graph based as RDF triples in a triplestore.
Features:
- semantic web technologies in a clinical registry (RDF,OWL, LOD,...)
- uses knowlegde from other ontologies which are in the linked open data cloud (LOD)
- user input will automatically generate RDF
- all communications over HTTPS possible
- SPARQL endpoint protection by eLDS-Backend
- implements TMF's generic data protection concept
- uses Mainzelliste for PID generation (pseudonymisation)
Project Team
- Clemens Hoffmann (Principle Contact / Maintainer)