SCRS: Semantic Clinical Registry System for Rare Diseases

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The SCRS for Rare Diseases project is a generic framework to set up a clinical registry which takes advantage of semantic web technologies. Patient's data will be stored graph based as RDF triples in a triplestore.

Features:

  • semantic web technologies in a clinical registry (RDF,OWL, LOD,...)
  • uses knowlegde from other ontologies which are in the linked open data cloud (LOD)
  • user input will automatically generate RDF
  • all communications over HTTPS possible
  • SPARQL endpoint protection by eLDS-Backend
  • implements TMF's generic data protection concept
  • uses Mainzelliste for PID generation (pseudonymisation)

Project Team

Publications

by (Editors: ) [BibTex of ]

News

DBpedia Knowledge Engineering PhD Symposium ( 2022-05-02T16:59:37+02:00 by Julia Holze)

2022-05-02T16:59:37+02:00 by Julia Holze

Dear all,  We are excited to invite you to the 1st DBpedia Knowledge Engineering PhD Symposium, organized on July 6th, 2022 in Leipzig, Germany. Read more about "DBpedia Knowledge Engineering PhD Symposium"

Tutorial @ Knowledge Graph Conference 2022 ( 2022-04-25T12:24:06+02:00 by Julia Holze)

2022-04-25T12:24:06+02:00 by Julia Holze

On May 2, 2022 we will organize a tutorial 2.0 at the Knowledge Graph Conference (KGC) 2022. Read more about "Tutorial @ Knowledge Graph Conference 2022"

International Workshop on Data-driven Resilience Research 2022 ( 2022-04-21T14:43:27+02:00 by Julia Holze)

2022-04-21T14:43:27+02:00 by Julia Holze

In the face of continuously changing contextual conditions and ubiquitous disruptive crisis events, the concept of resilience refers to some of the most urgent, challenging, and interesting issues of nowadays society. Read more about "International Workshop on Data-driven Resilience Research 2022"

DBpedia @ Google Summer of Code Program 2022 ( 2022-03-23T14:26:48+01:00 by Julia Holze)

2022-03-23T14:26:48+01:00 by Julia Holze

DBpedia, one of InfAI’s community projects, will be part of the 11th Google Summer of Code (GSoC) program. The GSoC program has the goal to bring students from all over the globe into open source software development. Read more about "DBpedia @ Google Summer of Code Program 2022"

DBpedia Tutorial @ The Web Conference 2022 ( 2022-03-16T13:52:16+01:00 by Julia Holze)

2022-03-16T13:52:16+01:00 by Julia Holze

Dear all, We are proud to announce that we will organize an online tutorial at the Web Conference on 25th of April 2022. A particular focus will be put on the DBpedia Infrastructure, i.e. Read more about "DBpedia Tutorial @ The Web Conference 2022"