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http://aksw.org/Projects/SCRS an entity of type: IncubatorProject

The SCRS for Rare Diseases project is a generic framework to set up a clinical registry which takes advantage of semantic web technologies. Patient's data will be stored graph based as RDF triples in a triplestore.
Our old website is currently off-line while we are trying recreate it with more modern tech.
eccenca GmbH (D)


  • semantic web technologies in a clinical registry (RDF,OWL, LOD,...)
  • uses knowlegde from other ontologies which are in the linked open data cloud (LOD)
  • user input will automatically generate RDF
  • all communications over HTTPS possible
  • SPARQL endpoint protection by eLDS-Backend
  • implements TMF's generic data protection concept
  • uses Mainzelliste for PID generation (pseudonymisation)
Clemens Hoffmann
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